Wednesday, February 3, 2021

The Long Road to Recovery

     A lot has happened since I last posted. This includes 2 more hospital stays and I don't even know how many trips to the ER. I was taken back to the ER Christmas night because my legs were so swollen and pale, I mean I'm pale to begin with but they were ghost white. Turns out my body was rejecting the blood thinner that they sent me home with and I got a blood clot in my right leg, I was admitted for 48hrs and put back onto the original blood thinner I was on so I now have to give myself a shot twice a day. 

    The third hospital stay I kept off of Facebook because I didn't want to freak out my friends and family. I ended up calling 911 and being taken to the ER by ambulance. because hubby was at work and I was home alone and I just felt wrong. I was dizzy, both arms and my chest were tingling/burning. We don't know what caused it but I was admitted again for about 48hrs to keep an eye on me. This was January 5th that that happened. Since then I have had a few more ER visits because of my heart freaking me out because it would just randomly start to beat fast and harder then normal. 1 heart monitor and cardiologist appointment later my heart is totally fine and is probably just working a little harder at some points because of the clots and stress. After the appointment with the cardiologist my heart has calmed down which he said it most likely would because I now know for sure that its ok so I'm not stressing over it as well. 

    Next week I go to the hematologist to see if I have any unknown blood diseases/problems. Which means probably more blood draws and scans. It will be interesting to see if I do in fact have a problem that we just didn't know I had until now. 

    Last week I had yet another trip to the ER due to being dizzy and my heart acting up at the same time. SO I got yet another CT scan this time of my head and my first ever MRI again of my head to make sure I didn't have any bleeds and or had a stroke and what not all came back clear. But mom came up with an idea that I am now in the process of seeing if I have it. What is it? its called Meniere's Disease and all it is is an inner ear disorder that causes vertigo attacks. It's not deadly or anything it just basically will randomly make me dizzy for a bit then goes away. So I need to get a hearing test and thankfully since I had the CT scan and MRI my ENT can just pull those and look at them instead of making me go through them again. So if you are keeping tract that would be 3 ear problems if I do have it. I also have otosclerosis and estuation tube disfunction  why not go for the trifecta. 

    To say I'm sick of seeing doctors in an understatement but I know I have to so I go cause I know its important. I have also seen my main doctor last week which was a good visit as she was happy to see that I'm doing better then what I was the first time she saw me. She also got me a temp handicap placer to help me with my walking and stuff through the rest of winter. She's pretty sure my blood clots are COVID related so I told her how we thought I had it back in 2019 cause all my symptoms matched so I have to bring that up at my appointment next week with the hematologist. 

    I did go see my OBGYN because I can no longer have any hormonal birth control. We are trying some pills that will make me have a period every 2 months, no hormones in the pills. if those don't work than she will put me into a medically induced menopause which will require me to see her once a month for a shot for a while. Just what I need yet another shot. Here's hoping the pills work.

    Mentally I'm doing ok, I'm not going to lie, it's tough not being able to do everything I want to do and be independent like I once was. You would think having people dote over you and help you all the time would be great, it was for about 2 days and now it's just like just let me do it!! It's frustrating not being able to do stuff or go at the speed that I want to go at. I know everyone who is helping me and getting on me to take it easy is just watching out for me and cares about me and I do truly appreciate it and love them for it but I'm so fiercely independent and now I can't be at the moment. I also know I am truly lucky and very much loved by a lot of people and that feeling, that knowing that they all care is amazing. I'm truly blessed with amazing friends. I know that some of them will probably read this so thank you for helping me, I love you all!! 

I have had some small victories as well. Saturday I was able to get a haircut and then I even went grocery shopping! Mind you I was walking slower than normal in the store but I was able to do it! The other victory was back in January when the swelling finally went down and I was able to wear my shoes again. Each improvement is exciting to me, it means I'm getting closer to back to normal.